No good choices, only hard decisions: the delicate nature of team family communication in pompe disease
- International Journal of Family & Community Medicine
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Miriam Neis,1 Camila Neves da Silva,1 Maria da Graça Corso da Motta,1 Helena Becker Issi,1 Cristianne Maria Famer Rocha,1 Anali Martegani Ferreira,1 Paulo Roberto Antonacci Carvalho2
Keywords
child, family, glycogen storage disease type II, integrative palliative care, pediatric nursing
